Development of a spiritual-based palliative care model for the quality of life of people with HIV/AIDS

Rohman Rohman; Nursalam Nursalam; Tintin Sukartini; Hamidah Hamidah; Supatmi Supatmi; Diah Priyantini; Daviq Ayatulloh; Miciko Umeda

doi:10.4081/hls.2023.11737

Authors

Rohman Rohman
rohman1azzam@gmail.com
Faculty of Nursing, Universitas Muhammadiyah Jakarta, Jakarta; Faculty of Nursing, Universitas Airlangga, Surabaya, Indonesia. https://orcid.org/0000-0003-0854-6457
Nursalam Nursalam Faculty of Nursing, Universitas Airlangga, Surabaya, Indonesia.
Tintin Sukartini Faculty of Nursing, Universitas Airlangga, Surabaya, Indonesia.
Hamidah Hamidah Faculty of Medicine and Health, Universitas Muhammadiyah Jakarta, Jakarta, Indonesia.
Supatmi Supatmi Faculty of Health Science, Universitas Muhammadiyah Surabaya, Surabaya, Indonesia.
Diah Priyantini Faculty of Health Science, Universitas Muhammadiyah Surabaya, Surabaya, Indonesia.
Daviq Ayatulloh Faculty of Health Science, Universitas Gresik, Gresik, Indonesia.
Miciko Umeda Faculty of Nursing, Universitas Muhammadiyah Jakarta, Jakarta, Indonesia.

People living with HIV (PLHIV) require a focus on their quality of life to prevent deterioration. This study aims to establish a spiritual-based palliative nursing model to enhance the quality of life for PLHIV. A cross-sectional study of 225 PLHIV receiving treatment at Said Sukanto Hospital, Jakarta. Data, including demographic, disease, psychological, spiritual, support, services, spiritual-based palliative care, spiritual meaning in illness experience, and quality of life variables, were collected using a researcher-modified questionnaire. Data were analyzed using descriptive and structural analysis through Partial Least Square Equation Modeling (SEM-PLS). The outer model demonstrated construct validity (λ > 0.5) and high reliability (composite reliability > 0.7). The inner model exhibited moderate power (R2 > 0.33) and predictive relevance (1.009). Goodness-of-fit indicators (RMS Theta = 0.072, NFI = 0.971, SRMR = 0.098) confirmed the model's suitability. Hypothesis testing indicated the significance of all variables (p < 0.05). The findings support the application of a spiritual-based palliative nursing model to enhance the quality of life for PLHIV. This model offers a holistic approach encompassing physical, psychological, social, and spiritual well-being, providing a comprehensive framework for healthcare providers and policymakers to improve care for PLHIV.

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Rohman, R., Nursalam, N., Sukartini, T., Hamidah, H., Supatmi, S., Priyantini, D., Ayatulloh, D., & Umeda, M. (2023). Development of a spiritual-based palliative care model for the quality of life of people with HIV/AIDS. Healthcare in Low-Resource Settings, 11(2). https://doi.org/10.4081/hls.2023.11737