Participatory community-based arts for older people living with dementia in the community: how are they evaluated? A scoping review

Submitted: 7 November 2020
Accepted: 14 January 2021
Published: 23 February 2021
Abstract Views: 10127
PDF: 656
HTML: 38
Publisher's note
All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Any product that may be evaluated in this article or claim that may be made by its manufacturer is not guaranteed or endorsed by the publisher.

Authors

Although the interests in participative arts for people living with a dementia has increased over the last decade, what is yet to be reviewed is how participatory community- based arts activities for this group of people are evaluated. The overall aim of the following scoping review is to understand the scope of measurement/evaluation methods/approaches used in studies that recruited participants with dementia from the community (not from health/clinical or residential aged care settings or nursing homes) and delivered community-based participatory arts activities/programs (not art therapy programs) to them. The methodological framework by Arksey and O’Malley (2005) for undertaking a scoping review article was applied to this study. Collation, summarizing and reporting the results was carried out considering the research questions. 7 articles met inclusion/exclusion criteria published from 2013 to 2020. The type of arts activities included co-designs and co-creation of various types of arts (n=1), museum visiting and art-making activities (n=4), artistic education-based program (n=1), group singing (n=1). This scoping review shed light on the paucity of research in which older people living with dementia were recruited from the community (not healthcare/clinical settings) to participate in participatory community- based art activities. Also, the results revealed that evaluation of participatory community-based arts activities for older people living with dementia in the community should include methods/techniques to get a deeper insight into the participants’ values and perspectives and the social interaction benefits of such programs.

Dimensions

Altmetric

PlumX Metrics

Downloads

Download data is not yet available.

Citations

Dicker D, Nguyen G, Abate D, et al. Global, regional, and national age-sex-specific mortality and life expectancy, 1950–2017: a systematic analysis for the Global Burden of Disease Study 2017. Lancet 2018;392:1684-735. DOI: https://doi.org/10.1016/S0140-6736(18)31891-9
Livingston G, Sommerlad A, Orgeta V, et al. Dementia prevention, intervention, and care. Lancet 2017;390:2673-734. DOI: https://doi.org/10.1016/S0140-6736(17)31363-6
World Health Organization. Dementia 2017. Available from: https://www.who.int/mental_health/mhgap/dem_slides.pdf
World Health Organization. Dementia: a public health priority: World Health Organization; 2012.
Wu YT, Clare L, Jones IR, et al. Inequalities in living well with dementia - The impact of deprivation on well‐being, quality of life and life satisfaction: Results from the improving the experience of dementia and enhancing active life study. Int J Geriat Psychiat 2018;33:1736-42. DOI: https://doi.org/10.1002/gps.4998
Biggs S, Carr A, Haapala I. Dementia as a source of social disadvantage and exclusion. Austral J Ageing 2019;38:26-33. DOI: https://doi.org/10.1111/ajag.12654
Riley RJ, Burgener S, Buckwalter KC. Anxiety and stigma in dementia: a threat to aging in place. Nursing Clin 2014;49:213-31.
Batsch NL, Mittelman MS. Overcoming the stigma of dementia. World Alzheimer Report 2012;1:36-8.
Walsh K, Scharf T, Keating N. Social exclusion of older persons: a scoping review and conceptual framework. Eur J Ageing 2017;14:81-98. DOI: https://doi.org/10.1007/s10433-016-0398-8
Kasper JD, Freedman VA, Spillman BC, Wolff JL. The disproportionate impact of dementia on family and unpaid caregiving to older adults. Health Affairs 2015;34:1642-9. DOI: https://doi.org/10.1377/hlthaff.2015.0536
Hackett RA, Steptoe A, Cadar D, Fancourt D. Social engagement before and after dementia diagnosis in the English Longitudinal Study of Ageing. PLoS One 2019;14(8). DOI: https://doi.org/10.1371/journal.pone.0220195
Sun W, Clarke S-L, Madahey H, Zhou P. Recovery intervention to promote social connectedness through social recreational programs for persons with dementia: a critical analysis. advances in dementia research. IntechOpen; 2019. DOI: https://doi.org/10.5772/intechopen.83784
Tsekleves E, Bingley AF, Luján Escalante MA, Gradinar A. Engaging people with dementia in designing playful and creative practices: Co-design or co-creation? Dementia 2020;19:915-31. DOI: https://doi.org/10.1177/1471301218791692
Melunsky N, Crellin N, Dudzinski E, et al. The experience of family carers attending a joint reminiscence group with people with dementia: A thematic analysis. Dementia 2015;14:842-59. DOI: https://doi.org/10.1177/1471301213516332
Innes A, Page SJ, Cutler C. Barriers to leisure participation for people with dementia and their carers: An exploratory analysis of carer and people with dementia’s experiences. Dementia 2016;15:1643-65. DOI: https://doi.org/10.1177/1471301215570346
Stubbs B, Eggermont L, Soundy A, et al. What are the factors associated with physical activity (PA) participation in community dwelling adults with dementia? A systematic review of PA correlates. Archiv Gerontol Geriatr 2014;59:195-203. DOI: https://doi.org/10.1016/j.archger.2014.06.006
Noone S, Jenkins N. Digging for Dementia: Exploring the experience of community gardening from the perspectives of people with dementia. Aging Mental Health 2018;22:881-8. DOI: https://doi.org/10.1080/13607863.2017.1393793
Selkrig M. Learning about ourselves from others: transformation of artists’ identities through community-based arts practice. Int J Lifelong Educ 2011;30:577-89. DOI: https://doi.org/10.1080/02601370.2011.570875
Richards M, Lawthom R, Runswick-Cole K. Community-based arts research for people with learning disabilities: challenging misconceptions about learning disabilities. Disabil Soc 2019;34:204-27. DOI: https://doi.org/10.1080/09687599.2018.1522243
Lagacé M, Briand C, Desrosiers J, Larivière N. A qualitative exploration of a community-based singing activity on the recovery process of people living with mental illness. Br J Occupat Ther 2016;79:178-87. DOI: https://doi.org/10.1177/0308022615599171
Stickley T, Hui A. Social prescribing through arts on prescription in a UK city: participants' perspectives (part 1). Public Health 2012;126:574-9. DOI: https://doi.org/10.1016/j.puhe.2012.04.002
Burnside LD, Knecht MJ, Hopley EK, Logsdon RG. here: now - Conceptual model of the impact of an experiential arts program on persons with dementia and their care partners. Dementia 2017;16:29-45. DOI: https://doi.org/10.1177/1471301215577220
Unadkat S, Camic PM, Vella-Burrows T. Understanding the experience of group singing for couples where one partner has a diagnosis of dementia. Gerontologist 2017;57:469-78.
Stickley T, Wright N, Slade M. The art of recovery: outcomes from participatory arts activities for people using mental health services. J Mental Health 2018;27:367-73. DOI: https://doi.org/10.1080/09638237.2018.1437609
Castora-Binkley M, Noelker L, Prohaska T, Satariano W. Impact of arts participation on health outcomes for older adults. J Aging Human Arts 2010;4:352-67. DOI: https://doi.org/10.1080/19325614.2010.533396
Qureshi H. Outcomes in social care practice. Social Policy Research Unit 2001; 2001;Volume number 7.
Camic PM, Tischler V, Pearman CH. Viewing and making art together: a multi-session art-gallery-based intervention for people with dementia and their carers. Aging Mental Health 2014;18:161-8. DOI: https://doi.org/10.1080/13607863.2013.818101
Lyons S, Karkou V, Roe B, et al. What research evidence is there that dance movement therapy improves the health and wellbeing of older adults with dementia? A systematic review and descriptive narrative summary. Arts Psychother 2018;60:32-40. DOI: https://doi.org/10.1016/j.aip.2018.03.006
Windle G, Algar-Skaife K, Caulfield M, et al. Enhancing communication between dementia care staff and their residents: an arts-inspired intervention. Aging Mental Health 2019:1-10. DOI: https://doi.org/10.1080/13607863.2019.1590310
Zeilig H, Killick J, Fox C. The participative arts for people living with a dementia: a critical review. Int J Ageing Later Life 2014;9:7-34. DOI: https://doi.org/10.3384/ijal.1652-8670.14238
Lee R, Wong J, Shoon WL, et al. Art therapy for the prevention of cognitive decline. Arts Psychother 2019;64:20-5. DOI: https://doi.org/10.1016/j.aip.2018.12.003
Young R, Camic PM, Tischler V. The impact of community-based arts and health interventions on cognition in people with dementia: A systematic literature review. Aging Mental Health 2016;20:337-51. DOI: https://doi.org/10.1080/13607863.2015.1011080
Pickett J, Bird C, Ballard C, et al. A roadmap to advance dementia research in prevention, diagnosis, intervention, and care by 2025. Int J Geriatr Psychiat 2018;33:900-6. DOI: https://doi.org/10.1002/gps.4868
Gargon E, Gurung B, Medley N, et al. Choosing important health outcomes for comparative effectiveness research: a systematic review. PLoS One 2014;9(6). DOI: https://doi.org/10.1371/journal.pone.0099111
Sinha I, Jones L, Smyth RL, Williamson PR. A systematic review of studies that aim to determine which outcomes to measure in clinical trials in children. PLoS Med 2008;5(4). DOI: https://doi.org/10.1371/journal.pmed.0050096
Moniz-Cook E, Vernooij-Dassen M, Woods R, et al. A European consensus on outcome measures for psychosocial intervention research in dementia care. Aging Mental Health 2008;12:14-29. DOI: https://doi.org/10.1080/13607860801919850
Smith S, Lamping D, Banerjee S, et al. Measurement of health-related quality of life for people with dementia: development of a new instrument (DEMQOL) and an evaluation of current methodology. Health Technol Assess (Winchester, England) 2005;9:1-93. DOI: https://doi.org/10.3310/hta9100
Ward MC, Milligan C, Rose E, et al. The benefits of community-based participatory arts activities for people living with dementia: a thematic scoping review. Arts Health 2020:1-27. DOI: https://doi.org/10.1080/17533015.2020.1781217
Levac D, Colquhoun H, O'Brien KK. Scoping studies: advancing the methodology. Implement Sci 2010;5:69. DOI: https://doi.org/10.1186/1748-5908-5-69
Makhoul J, Chehab RF, Shaito Z, Sibai AM. A scoping review of reporting ‘Ethical Research Practices’ in research conducted among refugees and war-affected populations in the Arab world. BMC Med Ethics 2018;19:36. DOI: https://doi.org/10.1186/s12910-018-0277-2
Arksey H, O'Malley L. Scoping studies: towards a methodological framework. Int J Social Res Methodol 2005;8:19-32. DOI: https://doi.org/10.1080/1364557032000119616
Beard RL. Art therapies and dementia care: A systematic review. Dementia 2012;11:633-56. DOI: https://doi.org/10.1177/1471301211421090
Letts L, Wilkins S, Law M, et al. Critical review form-qualitative studies (version 2.0); 2007. Available from: https://www.unisa.edu.au/contentassets/72bf75606a2b4abcaf7f17404af374ad/7b-mcmasters_qualreview_version2-01.pdf
Camic PM, Hulbert S, Kimmel J. Museum object handling: A health-promoting community-based activity for dementia care. J Health Psychol 2019;24:787-98. DOI: https://doi.org/10.1177/1359105316685899
Schall A, Tesky VA, Adams A-K, Pantel J. Art museum-based intervention to promote emotional well-being and improve quality of life in people with dementia: The ARTEMIS project. Dementia 2018;17:728-43. DOI: https://doi.org/10.1177/1471301217730451
Ullán AM, Belver MH, Badía M, et al. Contributions of an artistic educational program for older people with early dementia: An exploratory qualitative study. Dementia 2013;12:425-46. DOI: https://doi.org/10.1177/1471301211430650
Wieczorkiewicz A, Hooper-Greenehill E. Museums and the Shaping of Knowledge, E. Hooper-Greenehill, Routledge, London and New York 1993:[recenzja]. Etnografia Polska. 1997;41(1-2).
Kugler P, Turvey M, Malloy T, et al. Steps to an ecology of mind. Chicago: University of Chicago Press; 2000.
Cohen GD, Perlstein S, Chapline J, et al. The impact of professionally conducted cultural programs on the physical health, mental health, and social functioning of older adults. The Gerontologist 2006;46:726-34. DOI: https://doi.org/10.1093/geront/46.6.726
Larner A. Addenbrooke's Cognitive Examination (ACE) for the diagnosis and differential diagnosis of dementia. Clin Neurol Neurosur 2007;109:491-4. DOI: https://doi.org/10.1016/j.clineuro.2007.04.004
Kaufer DI, Cummings JL, Ketchel P, et al. Validation of the NPI-Q, a brief clinical form of the Neuropsychiatric Inventory. J Neuropsychiat Clin Neurosci 2000;12:233-9. DOI: https://doi.org/10.1176/jnp.12.2.233
Johnson J, Culverwell A, Hulbert S, et al. Museum activities in dementia care: Using visual analog scales to measure subjective wellbeing. Dementia 2017;16:591-610. DOI: https://doi.org/10.1177/1471301215611763
Kuemmel A, Haberstroh J, Pantel J. CODEM instrument: developing a tool to assess communication behavior in dementia. GeroPsych 2014;27:23-31. DOI: https://doi.org/10.1024/1662-9647/a000100
Bygren LO, Konlaan BB, Johansson S-E. Attendance at cultural events, reading books or periodicals, and making music or singing in a choir as determinants for survival: Swedish interview survey of living conditions. BMJ 1996;313:1577-80. DOI: https://doi.org/10.1136/bmj.313.7072.1577
Glass TA, De Leon CM, Marottoli RA, Berkman LF. Population based study of social and productive activities as predictors of survival among elderly Americans. BMJ 1999;319:478-83. DOI: https://doi.org/10.1136/bmj.319.7208.478
Beauchet O, Bastien T, Mittelman M, et al. Participatory art-based activity, community-dwelling older adults and changes in health condition: Results from a pre–post intervention, single-arm, prospective and longitudinal study. Maturitas 2020 [Epub ahead of print]. DOI: https://doi.org/10.1016/j.maturitas.2020.01.006
Harding AJ, Morbey H, Ahmed F, et al. What is important to people living with dementia?: the ‘long-list’of outcome items in the development of a core outcome set for use in the evaluation of non-pharmacological community-based health and social care interventions. BMC Geriatrics 2019;19:94. DOI: https://doi.org/10.1186/s12877-019-1103-5
Bond J, Corner L. Researching dementia: are there unique methodological challenges for health services research? Ageing Soc 2001;21:95-116. DOI: https://doi.org/10.1017/S0144686X01008091
Moore TF, Hollett J. Giving voice to persons living with dementia: The researcher’s opportunities and challenges. Nursing Sci Q 2003;16:163-7. DOI: https://doi.org/10.1177/0894318403251793251793
Quinn C. Conducting interviews with people with dementia and their caregivers. SAGE Publications Ltd; 2017. DOI: https://doi.org/10.4135/9781526404855
Phinney A, Moody EM, Small JA. The effect of a community-engaged arts program on older adults’ well-being. Canad J Aging 2014;33:336-45. DOI: https://doi.org/10.1017/S071498081400018X

How to Cite

Bazooband, A., Courtney-Pratt, H., & Doherty, K. (2021). Participatory community-based arts for older people living with dementia in the community: how are they evaluated? A scoping review. Geriatric Care, 7(1). https://doi.org/10.4081/gc.2021.9470