The use of metaphors by service users with diverse long-term conditions: a secondary qualitative data analysis


Submitted: 26 March 2023
Accepted: 7 November 2023
Published: 12 January 2024
Abstract Views: 339
PDF: 171
Publisher's note
All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Any product that may be evaluated in this article or claim that may be made by its manufacturer is not guaranteed or endorsed by the publisher.

Authors

Long-term conditions and accompanied co-morbidities now affect about a quarter of the UK population. Enabling patients and caregivers to communicate their experience of illness in their own words is vital to developing a shared understanding of the condition and its impact on patients’ and caregivers’ lives and in delivering person-centred care. Studies of patient language show how metaphors provide insight into the physical and emotional world of the patient, but such studies are often limited by their focus on a single illness. The authors of this study undertook a secondary qualitative data analysis of 25 interviews, comparing the metaphors used by patients and parents of patients with five longterm conditions. Analysis shows how similar metaphors can be used in empowering and disempowering ways as patients strive to accept illness in their daily lives and how metaphor use depends on the manifestation, diagnosis, and treatment of individual conditions. The study concludes with implications for how metaphorical expressions can be attended to by healthcare professionals as part of shared care planning.


Alvesson, M., & Skoeldberg, K. (2000). Reflexive methodology: New vistas for qualitative research. Sage publications.

Cameron, L. (2003). Metaphor in educational discourse. Continuum.

Cameron, L., & Maslen, R. (2010). Metaphor analysis: Research practice in applied Linguistics, Social sciences and the humanities. Equinox.

Cameron, L., Maslen, R., Todd, Z., Maule, J., Stratton, P., & Stanley, N. (2009). The discourse dynamics approach to metaphor and metaphor-led discourse analysis. Metaphor and Symbol, 24(2), 63-89. DOI: https://doi.org/10.1080/10926480902830821

Charmaz, K. (1983). The loss of self: A fundamental form of suffering in the chronically ill. Sociology of Health and Illness, 5, 168-195. DOI: https://doi.org/10.1111/1467-9566.ep10491512

Charmaz, K. (1993). Good days, bad days: The self and chronic illness in time. Rutgers University Press.

Charteris-Black, J. (2004). Corpus approaches to critical metaphor analysis. Palgrave Macmillan. DOI: https://doi.org/10.1057/9780230000612

Consortium., B. (2001). British National Corpus (BNC World). Oxford University Computing Services Retrieved 28.11.23 from http://www.natcorp.ox.ac.uk/

Coulter, A., Roberts, S., & Dixon, A. (2013). Delivering better services for people with long term conditions. King's Fund.

Coyne, I. T. (1997). Sampling in qualitative research. Purposeful and theoretical sampling; Merging or clear boundaries? Journal of Advanced Nursing, 26, 623-630. DOI: https://doi.org/10.1046/j.1365-2648.1997.t01-25-00999.x

Demjén, Z., & Semino, E. (2016). Using metaphor in healthcare: Physical health. Routledge.

Demjén, Z., Semino, E., & Koller, V. (2016). Metaphors for “good” and “bad” deaths. A health professional view. Metaphor and the Social World, 6(6), 1-19. DOI: https://doi.org/10.1075/msw.6.1.01dem

Doyle, C., Lennox, L., & Bell, D. (2013, Jan 3). A systematic review of evidence on the links between patient experience and clinical safety and effectiveness. BMJ Open, 3(1). DOI: https://doi.org/10.1136/bmjopen-2012-001570

Epstein, R. M., & Street, R. L., Jr. (2007). Patient-centered communication in cancer care: Promoting healing and reducing suffering. National Cancer Institute, National Institute of Health. DOI: https://doi.org/10.1037/e481972008-001

Fayaz, A., Croft, P., Langford, R. M., Donaldson, L. J., & Jones, G. T. (2016, Jun 20). Prevalence of chronic pain in the UK: a systematic review and meta-analysis of population studies. BMJ Open, 6(6), e010364. DOI: https://doi.org/10.1136/bmjopen-2015-010364

Gazeley, D. J., & Cronin, M. E. (2011, Dec). Diagnosis and treatment of the idiopathic inflammatory myopathies. Therapeutic Advances Musculoskeletal Disease, 3(6), 315-324. DOI: https://doi.org/10.1177/1759720X11415306

George, D. R., Whitehouse, E. R., & Whitehouse, P. J. (2016). Asking more of our metaphors: Narrative strategies to end the war on Alzheimer’s and humanize cognitive aging. The American Journal of Bioethics, 16(10), 22-24. DOI: https://doi.org/10.1080/15265161.2016.1214307

Heaton, J. (2004). Reworking qualitative data. Sage publications. DOI: https://doi.org/10.4135/9781849209878

Heaton, J. (2008). Secondary analysis of qualitative data: An overview. Historical Social Research, 33, 33-45.

King, A., & Hoppe, R. B. (2013, Sep). "Best practice" for patient-centered communication: A narrative review. J Grad Med Educ, 5(3), 385-393. DOI: https://doi.org/10.4300/JGME-D-13-00072.1

Lakoff, G., & Johnson, M. (1980). Metaphors we live by. University of Chicago Press.

Lanceley, A., & Clark, J. M. (2013, May). Cancer in other words? The role of metaphor in emotion disclosure in cancer patients. British Journal Psychotherapy, 29(2), 182-201. DOI: https://doi.org/10.1111/bjp.12023

Lilleker, J. B., Gordon, P., Lamb, J. A., Lempp, H., Cooper, R. G., Roberts, M. E., Jordan, P., Chinoy, H., Network, U. K. M., & Myositis, U. K. (2017). Patient-centred standards of care for adults with myositis. BMC Rheumatology, 1, 4 DOI: https://doi.org/10.1186/s41927-017-0002-7

Maguire, R., Connaghan, J., Arber, A., Klepacz, N., Blyth, K. G., McPhelim, J., Murray, P., Rupani, H., Chauhan, A., Williams, P., McNaughton, L., Woods, K., & Moylan, A. (2020). Advanced symptom management system for patients with malignant pleural mesothelioma (ASyMSmeso): Mixed methods study. Journal of Medical Internet Research, 22(11), e19180. DOI: https://doi.org/10.2196/19180

Masukume, G., & Zumla, A. (2012). Analogies and metaphors in clinical medicine. Clinical Medicine-London, 12(1), 55-56. DOI: https://doi.org/10.7861/clinmedicine.12-1-55

Miller, R. (2010). Speak up: 8 words & phrases to ban in oncology! Oncology Times, 32 (12), 20. DOI: https://doi.org/10.1097/01.COT.0000383777.50536.b2

Nuffield Trust. (2021, 15/11/2021). Supporting patients to manage their long-term conditions. Nuffield Trust. Available from: https://www.nuffieldtrust.org.uk/resource/supporting-patients-to-manage-their-long-term-condition-s

Oxford dictionary. (2010). Oxford dictionary of English (A. Stevenson, Ed. 3rd edition ed.). Oxford University Press.

Page, B. F., Hinton, L., Harrop, E., & Vincent, C. (2020, Oct). The challenges of caring for children who require complex medical care at home: “The go between for everyone is the parent and as the parent that's an awful lot of responsibility.” Health Expect, 23(5), 1144-1154. DOI: https://doi.org/10.1111/hex.13092

Palys, T. (2008). The Sage encyclopedia of qualitative research methods. Sage Publications.

Pena, G. P., & Andrade-Filho, J. (2010, Oct). Analogies in medicine: Valuable for learning, reasoning, remembering and naming. Advances Health Science Education: Theory and Pracicet, 15(4), 609-619. DOI: https://doi.org/10.1007/s10459-008-9126-2

Pragglejaz Group. (2007). MIP: A method for identifying metaphorically used words in discourse. Metaphor and Symbol, 22(1), 1-39. DOI: https://doi.org/10.1207/s15327868ms2201_1

Reisfield, G. M., & Wilson, G. R. (2004, Oct 1). Use of metaphor in the discourse on cancer. Journal of Clinical Oncolology, 22(19), 4024-4027. DOI: https://doi.org/10.1200/JCO.2004.03.136

Semino, E., Demjen, Z., & Demmen, J. (2018). An integrated approach to metaphor and framing in cognition, discourse, and practice, with an application to metaphors for cancer. Applied Linguistics, 39(5), 625-645.

Semino, E., Demjen, Z., Demmen, J., Koller, V., Payne, S., Hardie, A., & Rayson, P. (2017). The online use of violence and journey metaphors by patients with cancer, as compared with health professionals: a mixed methods study. BMJ Supportive & Palliative Care, 7(1), 60-66. DOI: https://doi.org/10.1136/bmjspcare-2014-000785

Skelton, J. R., Wearn, A. M., & Hobbs, R. (2002). A concordance-based study of metaphoric expressions used by general practitioners and patients in consultation. British Journal of General Practice, 52(475), 114-118.

Sontag, S. (1978). Illness as metaphor. Farrar, Straus and Giroux.

Southall, D. (2013). The patient's use of metaphor within a palliative care setting: Theory, function and efficacy. A narrative literature review. Palliaivet Medicine, 27(4), 304-313. DOI: https://doi.org/10.1177/0269216312451948

Stafford, M., Steventon, A., Thorlby, R., Fisher, R., Turton, C., & Deeny, S. (2018). Understanding the health care needs of people with multiple health conditions. The Health Foundation.

Stibbe, A. (1997). Fighting, warfare and the discourse of cancer. South African Journal of Linguistics, 15(2), 65-70. DOI: https://doi.org/10.1080/10118063.1997.9724108

Strang, J., Griffiths, P., & Gossop, M. (2006). Heroin smoking by “chasing the dragon”: Origins and history. Addiction, 92(6), 673-683. DOI: https://doi.org/10.1111/j.1360-0443.1997.tb02927.x

The British National Corpus, version 2 (BNC World). 2001. Distributed by Oxford University Computing Services on behalf of the BNC Consortium. URL: http://www.natcorp.ox.ac.uk/

Wittenberg, R., Hu, B., Barraza-Araiza, L., & Redhill, A. (2019). Projections of older people with dementia and costs of dementia care in the United Kingdom 2019-2040. Available from: https://www.alzheimers.org.uk/sites/default/files/2019-11/cpec_report_november_2019.pdf

Lempp, Heidi, Chris Tang, Emily Heavey, Katherine Bristowe, Helen Allan, Vanessa Lawrence, Beatriz Santana Suarez, Ruth Williams, Lisa Hinton, Karen Gillett, and Anne Arber. 2024. “The Use of Metaphors by Service Users With Diverse Long-Term Conditions: A Secondary Qualitative Data Analysis”. Qualitative Research in Medicine and Healthcare 7 (3). https://doi.org/10.4081/qrmh.2023.11336.

Downloads

Download data is not yet available.

Citations