A pilot study of participatory video in early psychosis: Qualitative findings

Arlene G. MacDougall; Elizabeth Price; Sarah Glen; Joshua C. Wiener; Sahana Kukan; Laura Powe; Richelle Bird; Paul H. Lysaker; Kelly K. Anderson; Ross M.G. Norman

doi:10.4081/qrmh.2022.10438

Authors

Arlene G. MacDougall
arlene.macdougall@sjhc.london.on.ca
Department of Psychiatry, Schulich School of Medicine and Dentistry, Western University, London, Ontario; Department of Epidemiology and Biostatistics, Schulich School of Medicine and Dentistry, Western University, London, Ontario; Parkwood Institute Research, St. Joseph’s Health Care London and Lawson Health Research Institute, London, Ontario, Canada.
Elizabeth Price Parkwood Institute Research, St. Joseph’s Health Care London and Lawson Health Research Institute, London, Ontario, Canada.
Sarah Glen Faculty of Health Sciences, McMaster University, Hamilton, Ontario, Canada.
Joshua C. Wiener Department of Epidemiology and Biostatistics, Schulich School of Medicine and Dentistry, Western University, London, Ontario, Canada.
Sahana Kukan Department of Epidemiology and Biostatistics, Schulich School of Medicine and Dentistry, Western University, London, Ontario, Canada.
Laura Powe Department of Psychiatry, Schulich School of Medicine and Dentistry, Western University, London, Ontario, Canada.
Richelle Bird Parkwood Institute Research, St. Joseph’s Health Care London and Lawson Health Research Institute, London, Ontario, Canada.
Paul H. Lysaker Department of Psychiatry, Indiana University School of Medicine, Indiana University, Indianapolis, Indiana, United States.
Kelly K. Anderson Department of Psychiatry, Schulich School of Medicine and Dentistry, Western University, London, Ontario; Department of Epidemiology and Biostatistics, Schulich School of Medicine and Dentistry, Western University, London, Ontario, Canada.
Ross M.G. Norman Department of Psychiatry, Schulich School of Medicine and Dentistry, Western University, London, Ontario; Department of Epidemiology and Biostatistics, Schulich School of Medicine and Dentistry, Western University, London, Ontario; Parkwood Institute Research, St. Joseph’s Health Care London and Lawson Health Research Institute, London, Ontario, Canada.

For people with psychotic disorders, developing a personal narrative about one’s experiences with psychosis can help promote recovery. This pilot study examined participants’ reactions to and experiences of participatory video as an intervention to help facilitate recovery-oriented narrative development in early psychosis. Outpatients of an early psychosis intervention program were recruited to participate in workshops producing short documentary-style videos of their collective and individual experiences. Six male participants completed the program and took part in a focus group upon completion and in an individual semistructured interview three months later. Themes were identified from the focus group and interviews and then summarized for descriptive purposes. Prominent themes included impacts of the videos on the participants and perceived impacts on others, fulfilment from sharing experiences and expressing oneself, value of collaboration and cohesion in a group, acquiring interpersonal and technological skills, and recommendations for future implementation. Findings of this study suggest that participatory video is an engaging means of self-definition and self-expression among young people in recovery from early psychosis.

Heckers S, Barch DM, Bustillo J, et al. Structure of the psychotic disorders classification in DSM-5. Schizophr Res 2013;150:11-4. DOI: https://doi.org/10.1016/j.schres.2013.04.039

McGrath JJ, Saha S, Al-Hamzawi AO, et al. Age of onset and lifetime projected risk of psychotic experiences: Cross-national data from the world mental health survey. Schizophr Bull 2016;42:933-41. DOI: https://doi.org/10.1093/schbul/sbw011

Harrison G, Hopper K, Craig T, et al. Recovery from psychotic illness: A 15- and 25-year international follow-up study. Br J Psychiatry 2001;178:506-17. DOI: https://doi.org/10.1192/bjp.178.6.506

Álvarez-Jiménez M, Gleeson JF, Henry LP, et al. Road to full recovery: Longitudinal relationship between symptomatic remission and psychosocial recovery in first-episode psychosis over 7.5 years. Psychol Med 2012;42:595-606. DOI: https://doi.org/10.1017/S0033291711001504

Leucht S, Lasser R. The concepts of remission and recovery in schizophrenia. Pharmacopsychiatry 2006;39:161-70. DOI: https://doi.org/10.1055/s-2006-949513

Emsley R, Chiliza B, Asmal L, Lehloenya K. The concepts of remission and recovery in schizophrenia. Curr Opin Psychiatry 2011;24:114-21. DOI: https://doi.org/10.1097/YCO.0b013e3283436ea3

Lysaker PH, Ringer J, Maxwell C, et al. Personal narratives and recovery from schizophrenia. Schizophr Res 2010;121:271-6. DOI: https://doi.org/10.1016/j.schres.2010.03.003

Windell D, Norman RMG. A qualitative analysis of influences on recovery following a first episode of psychosis. Int J Soc Psychiatry 2013;59:493-500. DOI: https://doi.org/10.1177/0020764012443751

Roe D, Davidson L. Self and narrative in schizophrenia: Time to author a new story. Med Humanit 2005;31:89-94. DOI: https://doi.org/10.1136/jmh.2005.000214

Raffard S, D’Argembeau A, Lardi C, et al. Narrative identity in schizophrenia. Conscious Cogn 2010;19:328-40. DOI: https://doi.org/10.1016/j.concog.2009.10.005

Cavelti M, Kvrgic S, Beck EM, et al. Self-stigma and its relationship with insight, demoralization, and clinical outcome among people with schizophrenia spectrum disorders. Compr Psychiatry 2012;53:468-79. DOI: https://doi.org/10.1016/j.comppsych.2011.08.001

Cavelti M, Rüsch N, Vauth R. Is living with psychosis demoralizing? Insight, self-stigma, and clinical outcome among people with schizophrenia across 1 year. J Nerv Ment Dis 2014;202:521-9. DOI: https://doi.org/10.1097/NMD.0000000000000160

Roe D, Hasson-Ohayon I, Derhi O, et al. Talking about life and finding solutions to different hardships: A qualitative study on the impact of narrative enhancement and cognitive therapy on persons with serious mental illness. J Nerv Ment Dis 2010;198:807-12. DOI: https://doi.org/10.1097/NMD.0b013e3181f97c50

Roe D, Hasson-Ohayon I, Mashiach-Eizenberg M, et al. Narrative enhancement and cognitive therapy (NECT) effectiveness: A quasi-experimental study. J Clin Psychol 2014;70:303-12. DOI: https://doi.org/10.1002/jclp.22050

Yanos PT, Roe D, Lysaker PH. Narrative enhancement and cognitive therapy: A new group-based treatment for internalized stigma among persons with severe mental illness. Int J Group Psychother 2011;61:576-95. DOI: https://doi.org/10.1521/ijgp.2011.61.4.576

Yanos PT, Roe D, West ML, et al. Group-based treatment for internalized stigma among persons with severe mental illness: Findings from a randomized controlled trial. Psychol Serv 2012;9:248-58. DOI: https://doi.org/10.1037/a0028048

Greben M, Schweitzer RD, Bargenquast R. Mechanisms of change in psychotherapy for people diagnosed with schizophrenia: The role of narrative reflexivity in promoting recovery. Aust J Rehabil Couns 2014;20:1-14. DOI: https://doi.org/10.1017/jrc.2014.4

Shaw J, Robertson C. Participatory video: A practical approach to using video creatively in group development work. Routledge; 1997.

Luttrell W, Restler V, Fontaine C. Youth video-making: Selves and identities in dialogue. In: Handbook of participatory video. AltaMira Press; 2012:164-177.

Yang K-H. Reflexivity, participation, and video. In: Handbook of participatory video. AltaMira Press; 2012:100-114.

Bery R. Participatory video that empowers. In: Participatory video: Images That transform and empower. SAGE Publications Inc.; 2003:102-121.

van der Ham AJ, Kupper F, Bodewes A, Broerse JEW. Stimulating client involvement and client-provider dialog through participatory video: Deliberations on long-term care in a psychiatric hospital. Patient Educ Couns 2013;91:44-49. DOI: https://doi.org/10.1016/j.pec.2012.11.017

Buchanan A, Murray M. Using participatory video to challenge the stigma of mental illness: a case study. Int J Ment Health Promot 2012;14:35-43. DOI: https://doi.org/10.1080/14623730.2012.673894

MacDougall AG, Kukan S, Price E, et al. Participatory video as a novel recovery-oriented intervention in early psychosis: A pilot study. Int J Soc Psychiatry 2020;66:780-784. DOI: https://doi.org/10.1177/0020764020932938

Norman RMG, Manchanda R. Prevention and Early Intervention Program for Psychoses (PEPP). Healthc Q 2016;18:37-41. DOI: https://doi.org/10.12927/hcq.2016.24442

Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol 2006;3:77-101. DOI: https://doi.org/10.1191/1478088706qp063oa

Lysaker PH, Vohs J, Hillis JD, et al. Poor insight into schizophrenia: Contributing factors, consequences and emerging treatment approaches. Expert Rev Neurother 2013;13:785-93. DOI: https://doi.org/10.1586/14737175.2013.811150

Chadwick PK. Peer-professional first-person account: Schizophrenia from the inside - Phenomenology and the integration of causes and meanings. Schizophr Bull 2007;33:166-73. DOI: https://doi.org/10.1093/schbul/sbl034

Lysaker PH, Buck KD, Ringer J. The recovery of metacognitive capacity in schizophrenia across 32 months of individual psychotherapy: A case study. Psychother Res 2007;17:713-20. DOI: https://doi.org/10.1080/10503300701255932

Lysaker PH, Minor KS, Lysaker JT, et al. Metacognitive function and fragmentation in schizophrenia: Relationship to cognition, self-experience and developing treatments. Schizophr Res Cogn 2020;19:100142. DOI: https://doi.org/10.1016/j.scog.2019.100142

McAdams DP, McLean KC. Narrative identity. Curr Dir Psychol Sci 2013;22:233-8. DOI: https://doi.org/10.1177/0963721413475622

Bilandzic H, Busselle R. Narrative persuasion. In: SAGE Handbook of persuasion: Developments in theory and practice. SAGE Publications Inc.; 2013:200-219. DOI: https://doi.org/10.4135/9781452218410.n13

Cohen MZ, Phillips JM, Palos G. Qualitative research with diverse populations. Semin Oncol Nurs 2001;17:190-6. DOI: https://doi.org/10.1053/sonu.2001.25948

Happell B, Roper C. Consumer participation in mental health research: Articulating a model to guide practice. Australas Psychiatry 2007;15:237-41. DOI: https://doi.org/10.1080/10398560701320113

MacDougall, Arlene G., Elizabeth Price, Sarah Glen, Joshua C. Wiener, Sahana Kukan, Laura Powe, Richelle Bird, Paul H. Lysaker, Kelly K. Anderson, and Ross M.G. Norman. 2022. “A Pilot Study of Participatory Video in Early Psychosis: Qualitative Findings”. Qualitative Research in Medicine and Healthcare 6 (2). https://doi.org/10.4081/qrmh.2022.10438.