e-ENERCA: telemedicine platform for rare anaemias

  • Béatrice Gulbis | bgulbis@ulb.ac.be Department of Clinical Biology & Molecular Genetics; Clinical Chemistry Department, Hôpital Erasme; Université Libre de Bruxelles, Brussels, Belgium.
  • María del Mar Mañú Pereira Hospital Clinic, University of Barcelona, Spain.
  • Emilio J. Armaza Armaza Cátedra Interuniversitaria Diputación Foral de Bizkaia de Derecho y Genoma Humano, Universidad de Deusto, Universidad del País Vasco/Euskal Herriko Unibertsitatea, Bilbao, Spain.
  • Pilar Nicolás Cátedra Interuniversitaria Diputación Foral de Bizkaia de Derecho y Genoma Humano, Universidad de Deusto, Universidad del País Vasco/Euskal Herriko Unibertsitatea, Bilbao, Spain.
  • for the ENERCA working group

Abstract

The creation of a telemedicine, tele-expertise platform opens a new challenge within the European Network for Rare and Congenital Anaemias (ENERCA; www.enerca.org). This is a cornerstone in the field of rare anaemias, in which national expertise is usually scarce and a significant number of patients remain undiagnosed. Experts in rare diseases are specially needed of shared knowledge platforms offering the possibility of a faster and more accurate diagnosis and the availability of a better patients’ follow-up. The platform developed by e- ENERCA will be user friendly and intuitive so it will be used by the majority of professionals without requiring a specific formation. The idea of inter professional consultation is to bring medical experts together for collaborative involvement in activities that maximize the benefits and improvement in patient care.

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Published
2014-12-04
Keywords:
rare anaemias, telemedicine, ENERCA, patients, tele-expertise.
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How to Cite
Gulbis, B., del Mar Mañú Pereira, M., Armaza Armaza, E. J., Nicolás, P., & working group, for the. (2014). e-ENERCA: telemedicine platform for rare anaemias. Thalassemia Reports, 4(3). https://doi.org/10.4081/thal.2014.4879

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