A patient centred approach to care planning for patients with chronic genetic diseases

Abstract

This essay proposes seven pre-requisites for the creation of effective programmes of care and support for patients living with the consequences of chronic genetic diseases. It then goes on to discuss the role of patient organisations and other stakeholders in bringing about the development and implementation of these.

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Published
2013-03-26
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How to Cite
Kent, A. (2013). A patient centred approach to care planning for patients with chronic genetic diseases. Thalassemia Reports, 3(1s), e37. https://doi.org/10.4081/thal.2013.s1.e37