Guidelines for adults
AbstractSickle Cell Disease is a rare condition in many regions of Europe and general clinicians responsible for local services to patients with SCD may have relatively little experience and knowledge of the condition. Inadequate and inappropriate management may deprive patients of treatments and support shown to be beneficial, and may result in sub-optimal outcomes in the short and long-term. A recent report of fatal outcomes in patients with haemoglobin disorders in the UK (National Confidential Enquiry into Patient Outcome and Death, 2008) has highlighted a number of cases where mortality could have been avoided by adherence to standard guidelines or protocols.
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