Pain and bone disease: a patient’s view
Pain in thalassemia proves to be an emergent issue even if it is not possible to correlate it definitely to bone disease, but we strongly believe that a multidisciplinary approach, may be as decisive in this case as it was in the struggle against thalassemia. In fact, we strongly believe that the involvement of various specialists such as endocrinologists, orthopedist, anesthesiologist, in a close team coordinated by a specialist in thalassemia is absolutely necessary for achieving our aims. First of all, we need to implement clinical trials to identify the mechanisms of disease, to find the optimal management of the problem in order to provide new therapeutic methods for preventing the thalassemia-induced osteoporosis and to reduce the presence of very disabling pain for patients. Patients’ expectations for the future are to continuously improve the quality of life. To do that it is needed to identify pathways to prevent all the complications of thalassemia that cause widespread pain, above all osteoporosis. Although we have seen that osteoporosis is not the sole cause of pain for thalassemia patients, it is true that this seems to have a great incidence in thalassemia patients and it gives a significant contribute to an increased pain.
地中海贫血疼痛亟待解决，即使它可能与和骨病毫不相关，但我们坚信可以找到一种战胜地中海贫血症的多学科结合疗法。 事实上，如果要完成我们的目标，绝对有必要邀请一名地中海贫血专家，在内分泌学家、矫形外科医师和麻醉学家组成的队伍的配合下紧密展开工作。 首先，我们需要开展临床试验，确认发病机制，找出疾病最佳的控制方法，以找到预防地中海贫血诱发骨质疏松症的新疗法和减少疼痛的频率。 病患者对未来的期望是能够不断地提高自己的生活质量。要做到，病患者需要找到预防地中海贫血所有并发症引起的疼痛的方法,特别是骨质疏松症。 对地中海贫血症患有而言，尽管骨质疏松症不是导致疼痛唯一的病原，但骨质疏松症有较高的发病率，会导致剧烈疼痛，这也是事实。
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Copyright (c) 2011 L. Brunetta
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