Thalassaemia prior and consequent to COVID-19 pandemic. The perspective of Thalassaemia International Federation (TIF)

  • Androulla Eleftheriou | thalassaemia@cytanet.com.cy Thalassaemia International Federation, Nicosia, Cyprus.
  • Lily Cannon Thalassaemia International Federation, Nicosia, Cyprus.
  • Michael Angastiniotis Thalassaemia International Federation, Nicosia, Cyprus.

Abstract

Patients with haemoglobin disorders, particularly β-thalassaemia or sickle cell disease (SCD) or combined forms, on account of their underlying disease pathology and associated (iron load mainly in the case of thalassaemia) co-morbidities are defined as high-risk individuals prone to develop more severe complications from coronavirus disease-2019 (COVID-19). Despite the fact that epidemiological evidence concerning severe acute respiratory syndrome-coronavirus-2 (SARS-CoV-2) infection in these patients is currently limited across the world, it is expected that COVID-19 pandemic will have a very serious, negative impact on national economies, healthcare and social systems and consequently significant respective repercussions on the patients particularly chronic ones, and their families. Although this may be a temporary challenge in some countries of high HDI and robust health, public health and social infrastructures, this can be a long term challenge with serious to tragic consequences in countries particularly devoid of universally covered heath care systems. Thalassaemia International Federation (TIF) in this present paper summarises the key challenges as expressed by the patients, their families and involved health care professionals themselves prior and consequent to COVID-19 pandemic, describes its response during the pandemic and expresses its position in support of its global patient community.

 

血红蛋白紊乱的患者,特别是β地中海贫血或镰状细胞病(SCD)或合并形式的患者,由于其潜在的疾病病理和相关的(铁负荷主要是在地中海贫血的情况下)共病,被定义为容易发展为冠状病毒病-2019(COVID-19)更严重的并发症的高危个体。尽管目前全世界有关这些患者严重急性呼吸综合征-冠状病毒-2(SARS-CoV-2)感染的流行病学证据有限,但预计COVID-19大流行将对国家经济、医疗和社会系统产生非常严重的负面影响,并因此对患者尤其是慢性患者及其家庭产生各自的重大影响。虽然这在一些人类发展指数高、卫生、公共卫生和社会基础设施健全的国家可能是一个暂时的挑战,但在那些特别是缺乏普遍覆盖的医疗保健系统的国家,这可能是一个长期的挑战,并会带来严重到悲剧性的后果。 国际地中海贫血病联合会在本文件中总结了患者、其家属和有关保健专业人员自己在COVID-19大流行之前和之后所表达的主要挑战,描述了该联合会在大流行期间的应对措施,并表达了其支持全球患者群体的立场。

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Published
2020-06-30
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Issue
Section
TIF's role in promoting global control of hemoglobinopathies
Keywords:
Thalassaemia, sickle cell disease, haemoglobinopathies, COVID-19, SARS-CoV-2, coronavirus, pandemic.
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How to Cite
Eleftheriou, A., Cannon, L., & Angastiniotis, M. (2020). Thalassaemia prior and consequent to COVID-19 pandemic. The perspective of Thalassaemia International Federation (TIF). Thalassemia Reports, 10(1). https://doi.org/10.4081/thal.2020.9138

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