e-ENERCA: telemedicine platform for rare anaemias

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Béatrice Gulbis *
María del Mar Mañú Pereira
Emilio J. Armaza Armaza
Pilar Nicolás
for the ENERCA working group
(*) Corresponding Author:
Béatrice Gulbis | bgulbis@ulb.ac.be

Abstract

The creation of a telemedicine, tele-expertise platform opens a new challenge within the European Network for Rare and Congenital Anaemias (ENERCA; www.enerca.org). This is a cornerstone in the field of rare anaemias, in which national expertise is usually scarce and a significant number of patients remain undiagnosed. Experts in rare diseases are specially needed of shared knowledge platforms offering the possibility of a faster and more accurate diagnosis and the availability of a better patients’ follow-up. The platform developed by e- ENERCA will be user friendly and intuitive so it will be used by the majority of professionals without requiring a specific formation. The idea of inter professional consultation is to bring medical experts together for collaborative involvement in activities that maximize the benefits and improvement in patient care.

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