Haemoglobinopathy prevention program in Turkey

  • D. Canatan | paola.granata@pagepress.org President of Thalassemia Federation of Turkey, President of Akdeniz Kan Hastaliklari Vakfi Antalya, Turkey.


Thalassemia and abnormal haemoglobins are a serious health problem in Turkey. Very important steps for toward preventing thalassemia have been taken in Turkey by Ministry of Health (MOH), Turkish National Haemoglobinopathy Council (TNHC) and Thalassemia Federation of Turkey (TFT) since 2000. In 1993, a law was issued called Fight Against Hereditary Blood Disease especially for thalassemia and haemoglobinopathies. The law commends to prevent haemoglobinopathies and to treat all patients with haemoglobinopathy and thalassemia. A pilot project was started and centres were created in the MOH Hospitals in the southern provinces of Turkey. In 2000, TNHC was installed to combine all centres, foundations, and associations into one organization controlled by the MOH. In 2001, the MOH and the TNHC made an inventory of all recorded patients with thalassemia and abnormal hemoglobins in Turkey, registering at least 4513 patients. In 2002, written regulations for the Fight Against Hereditary Blood Disease were published. MOH and TNHC selected 33 provinces situated in the Thrace, Marmara, Aegean, Mediterranean and South Eastern regions with high birth prevalence of severe haemoglobinopathies. In 2003, the haemoglobinopathy scientific committee was set-up, a guidebook was published and a national Hemoglobinopaty Prevention Program (HPP) was started in these high risk provinces . This program is running in these provinces successfully. In 2005, TFT was established as a secular society organization instead of TNHC. In 2007, National Thalassemia Prevention Campaign (NTPC) was organized for public education by TFT. This campaign contributed very important supporting to HPP in Turkey, because totally 62.682 people such as health workers, students, teachers, demarches, religion officers and the other many people were educated for preventing thalassemia and haemoglobinopathies. In 2009, National Thalassemia Education Seminars (NTES) for health personnel have been planned in 26 cities by MOH and TFT. A total 3.600 health persons were educated on thalassemia prevention and therapy with NTES in 18 centres in 2009 and 2010. In conclusion, according to reports of MOH, 46 first level haemoglobinopathy diagnosis centres, 5 second level diagnosis and therapy centre and 5 third level prenatal diagnosis centre were setup and licenced in 30 cities between 2003 and 2009. While premarital screening tests were 30% of all couples in 2003, it increased continuously during 6 years and it reached 81% in 2008. The number of new born with thalassemias and hemoglobinopathies was 272 in 2002, it was decreased to 23 in 2008, as a result there has been an 90% reduction in new affected births.


地中海贫血和异常血红蛋白是土耳其国内的两大严重的健康问题。 从2000年起,土耳其卫生部(MOH)、土耳其国家血红蛋白病委员会(TNHC)和土耳其地中海贫血联合会(TFT)采取了多种预防地中海贫血的重要措施。1993年,土耳其颁布了名为“抵抗遗传性血色病”(主要针对地中海贫血和异常血红蛋白)的法律, 旨在防止血红蛋白病和治疗所有血红蛋白病患者和地中海贫血患者。 在土耳其南部各省的卫生部所属医院启动了试点项目并成立了多个卫生中心。 2000年,土耳其国家血红蛋白病委员会成立。该委员会和所有卫生中心、基金会和协会组成一个庞大组织,归属卫生部管理。 2001年,MOH和TNHC登记了所有记录在案的地中海贫血患者和异常血红蛋白患者,共计4513人。 2002年,颁布了抵抗遗传性血色病的书面法规。 MOH和TNHC确定了位于色雷斯、马尔马拉、爱琴海、地中海和东南地区等血红蛋白病出生高发地区的33个省。 2003年,成立血红蛋白病科学委员会,出版了一本指导手册并在高危地区启动了血红蛋白病预防项目(HPP)。 该项目在这些省成功执行。 2005年,社会安全组织“土耳其地中海贫血联合会”(TFT)成立,并取代TNHC。 2007年,组织了国家血红蛋白病预防运动(NTPC)以便TFT实施公众教育。 该项运动对实施血红蛋白病预防项目(HPP)起到非常重要的支持作用,因为共计62682民众(包括卫生工作者、学生、教师、市长、宗教官员和其他很多身份的人民)都受到预防地中海贫血和异常血红蛋白的教育。 2009年,MOH和TFT为卫生工作者规划在26个城市召开国家地中海贫血教育研讨会(NTES)。 2009年和2010年,总共3600名正常人在18个卫生中心受到NTES开展的地中海贫血预防教育。总结,据MOH报告, 2003年到2009年期间,土耳其在30个城市总共成立了46第个一级血红蛋白病诊断中心、5个第二级诊断和治疗中心和5个第三级产前诊断中心,并全部颁发执照。婚前筛选检查在2003年占所有夫妻的30%, 之后6年持续升高,并在2008年达到81%。2002年,新生地中海贫血和血红蛋白病患儿人数为272名,2008年下降到23人,也就是说,受感染新生患儿减少了90%。



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haemoglobinopathy prevention program, Turkey.
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How to Cite
Canatan, D. (2011). Haemoglobinopathy prevention program in Turkey. Thalassemia Reports, 1(1), e4. https://doi.org/10.4081/thal.2011.s2.e4