Qualitative Research in Medicine and Healthcare https://www.pagepressjournals.org/index.php/qrmh <p><strong>Qualitative Research in Medicine and Healthcare</strong> represents an interdisciplinary and international forum for qualitative research in healthcare settings.&nbsp;The journal is conceived as a site for the emergence of dialogue between researchers and academics and healthcare practitioners; it allows an exchange between multiple parties in the health and social service professions, patients and clients as well as graduate students and researchers who practice qualitative methods. Qualitative research approaches healthcare in a completely different way from quantitative research, providing important insights into health-related phenomena, generating new avenues for empirical questions. Qualitative research examines lived experience and relational processes as the basis of social phenomena, including those related to health. Therefore, it can answer to questions that quantitative research cannot, such as why people do not adhere to a life-saving treatment regimen or why a certain healthcare intervention is so successful, or fails. It uses many methods of data collection and numerous approaches to data analysis that range from systematic coding to phenomelogical and inductive approaches. Each issue of <strong>Qualitative Research in Medicine and Healthcare</strong> provides readers with a varied array of material and commentaries on important people and issues in healthcare as well as peer-reviewed articles that address and examine: the illness experience from multiple and varied perspectives; constructions of health, illness and healthcare that highlight relational and cultural contexts; healthcare policies in various organizational and institutional settings; attention to the communicative dynamics of the patient-provider relationship; narrative approaches to health.</p> en-US <p><strong>PAGEPress</strong> has chosen to apply the&nbsp;<a href="http://creativecommons.org/licenses/by-nc/4.0/" target="_blank" rel="noopener"><strong>Creative Commons Attribution NonCommercial 4.0 International License</strong></a>&nbsp;(CC BY-NC 4.0) to all manuscripts to be published.<br><br> An Open Access Publication is one that meets the following two conditions:</p> <ol> <li>the author(s) and copyright holder(s) grant(s) to all users a free, irrevocable, worldwide, perpetual right of access to, and a license to copy, use, distribute, transmit and display the work publicly and to make and distribute derivative works, in any digital medium for any responsible purpose, subject to proper attribution of authorship, as well as the right to make small numbers of printed copies for their personal use.</li> <li>a complete version of the work and all supplemental materials, including a copy of the permission as stated above, in a suitable standard electronic format is deposited immediately upon initial publication in at least one online repository that is supported by an academic institution, scholarly society, government agency, or other well-established organization that seeks to enable open access, unrestricted distribution, interoperability, and long-term archiving.</li> </ol> <p>Authors who publish with this journal agree to the following terms:</p> <ol> <li>Authors retain copyright and grant the journal right of first publication with the work simultaneously licensed under a Creative Commons Attribution License that allows others to share the work with an acknowledgement of the work's authorship and initial publication in this journal.</li> <li>Authors are able to enter into separate, additional contractual arrangements for the non-exclusive distribution of the journal's published version of the work (e.g., post it to an institutional repository or publish it in a book), with an acknowledgement of its initial publication in this journal.</li> <li>Authors are permitted and encouraged to post their work online (e.g., in institutional repositories or on their website) prior to and during the submission process, as it can lead to productive exchanges, as well as earlier and greater citation of published work.</li> </ol> francesca.baccino@pagepress.org (Francesca Baccino) tiziano.taccini@pagepress.org (Tiziano Taccini) Fri, 19 Apr 2019 00:00:00 +0200 OJS 3.1.1.4 http://blogs.law.harvard.edu/tech/rss 60 Editor’s introduction: research as mediation https://www.pagepressjournals.org/index.php/qrmh/article/view/8254 <p>Not available.</p> Mariaelena Bartesaghi ##submission.copyrightStatement## http://creativecommons.org/licenses/by-nc/4.0 https://www.pagepressjournals.org/index.php/qrmh/article/view/8254 Tue, 30 Apr 2019 10:47:14 +0200 #ttc on Instagram: a multimodal discourse analysis of the treatment experience of patients pursuing in vitro fertilization https://www.pagepressjournals.org/index.php/qrmh/article/view/7875 <p>While searching the Internet for health information is now commonplace, giving and receiving medical expertise on social media platforms such as Instagram (IG) is underexplored. In order to investigate the ways in which social media platforms are a resource for seeking medical expertise, we employed a multimodal discourse analysis; specifically, we focused on the hashtag #ttc and the engagement of the IG community it comprised. We examined three main themes around medical expertise during treatment indexed by the hashtag: treatment protocol choices, treatment side effects and pregnancy diagnosis/confirmation. Our findings suggest that social media platforms provide a new arena in which patients can challenge medical expertise by circumventing it or adopting lay expertise instead of practitioner suggestions. We close with research implications and suggestions for further research.</p> Bethany Johnson, Margaret M. Quinlan, Nathan Pope ##submission.copyrightStatement## http://creativecommons.org/licenses/by-nc/4.0 https://www.pagepressjournals.org/index.php/qrmh/article/view/7875 Thu, 18 Apr 2019 13:46:43 +0200 Clinical translational students' perceptions of research ethics coursework: a case study https://www.pagepressjournals.org/index.php/qrmh/article/view/7943 <p>Relatively unknown is whether coursework in responsible conduct of research actually achieve the purposes for which it is designed. In this study, the authors report clinical translational students’ perceptions of their research ethics coursework and the alignment between course content as recommended in the literature. We used grounded theory to portray emergent findings across focus groups and semistructured interviews among 31 participants at one clinical translational science hub. We also used thematic analysis to analyze course syllabi. Two themes emerged: Averting scientific misconduct and Responding to ethical dilemmas. Students reported that they did not acquire requisite strategies to address research ethical dilemmas. One of the course syllabi indicated the provision of active learning opportunities. However, the findings did not offer support. Developing experiential learning activities and ensuring that course content is aligned with the contemporary ethical practices, such as case study and portfolio development, is recommended.</p> Linda S. Behar-Horenstein, Huibin Zhang ##submission.copyrightStatement## http://creativecommons.org/licenses/by-nc/4.0 https://www.pagepressjournals.org/index.php/qrmh/article/view/7943 Thu, 18 Apr 2019 14:07:51 +0200 Experiences of weight-related stigma among low-income rural women of higher weights from the midwestern United States https://www.pagepressjournals.org/index.php/qrmh/article/view/7832 <p>Weight-related stigma and stereotypes are widespread. Despite established research highlighting the disproportionate disparities rural individuals face, studies focusing on women in rural and low-income environments are underrepresented in the literature. The current study addressed these gaps in the literature using 25 in-depth interviews, which were analyzed using interpretive phenomenological procedures. The research questions were: i) what are low income rural women of higher weights’ understandings and experiences of weight stigma in healthcare? and ii) to what extent do their experiences of stigma affect or do not affect their healthcare-related behaviors? Sixteen women in the study experienced weight-related stigma in healthcare. Many delayed their care while others felt their care was essentially denied. Findings indicate that more can be done to address weight-related stigma.</p> Katherine Hughes, Andrea E. Bombak, Samuel Ankomah ##submission.copyrightStatement## http://creativecommons.org/licenses/by-nc/4.0 https://www.pagepressjournals.org/index.php/qrmh/article/view/7832 Thu, 18 Apr 2019 14:22:33 +0200 Health concerns of young Israelis moving from the ultra-orthodox to the secular community: vulnerabilities associated with transition https://www.pagepressjournals.org/index.php/qrmh/article/view/8051 <p>Many young Israelis leave the Ultra-Orthodox religious community to join the secular world. In this study we examine health considerations of ex-Orthodox (ExOr) individuals in an attempt to define their vulnerabilities and needs.12 young adults were asked to relate to health problems that trouble the ExOr community. The semi-structured interviews were analyzed qualitatively to identify relevant motives. Interviewees indicated that the ExOr population could be affected by mental health problems, including stress and depression, by sexual health problems, and by risks related to substance abuse and hazardous behavior. Interviewees suggested that these problems are associated with difficulties encountered prior and during the transition process, as well as with the hardships of acculturation and assimilation in the secular world. Comparisons to previous findings on the health of immigrants, young adults and LGBT populations suggest that the process of transition per-se could engender vulnerability and trigger health problems.</p> Baruch Velan, Ronit Pinchas-Mizrachi ##submission.copyrightStatement## http://creativecommons.org/licenses/by-nc/4.0 https://www.pagepressjournals.org/index.php/qrmh/article/view/8051 Thu, 18 Apr 2019 15:20:45 +0200 Experiences of patients living with inflammatory bowel disease in rural communities https://www.pagepressjournals.org/index.php/qrmh/article/view/7962 <p>Inflammatory bowel disease (IBD) is a chronic disease that often has fluctuating and painful symptoms. IBD patients must cope with a lifelong illness with relapses, remissions, and varied treatments that can affect their overall quality of life. Patients living in a rural setting are faced with further challenges such as access to healthcare, physician availability, and socioeconomic factors. For the current study, we interviewed adult patients in a clinic who were diagnosed with IBD for at least 3 years to better understand their experiences with the aim to inform intervention and educations for patients and physicians. Through a thematic analysis, we argue that five themes emerged from the data: i) IBD etiology, ii) ceding self-care, iii) environmental factors associated with disclosure, iv) stigma, and v) environmental obstacles to care. We suggest opportunities for research and collaboration among researchers and practitioners to help reduce stigma associated with IBD and promote health among rural communities.</p> Rebecca K. Britt, Andrew Englebert ##submission.copyrightStatement## http://creativecommons.org/licenses/by-nc/4.0 https://www.pagepressjournals.org/index.php/qrmh/article/view/7962 Thu, 18 Apr 2019 00:00:00 +0200