Qualitative Research in Medicine and Healthcare 2019-05-13T17:28:02+02:00 Francesca Baccino Open Journal Systems <p><strong>Qualitative Research in Medicine and Healthcare</strong> is an interdisciplinary and international forum for qualitative research in healthcare settings. The journal is conceived as a site for dialogues between researchers, academics, and healthcare practitioners; it allows an exchange between multiple parties in the health and social service professions, patients and clients as well as senior and junior researchers who believe in the ethos of qualitative approaches. Qualitative research is reflexive. It takes into account that the empirical insights and theoretical propositions it produces are ontologically consequential for all those involved in the research process. This journal publishes research that use many methods of data collection and numerous approaches to data analysis, ranging from systematic coding to mostly inductive, phenomenological and narrative approaches. Submissions can be either theoretical, empirical, or present state of the art reviews of important subject matter in the field, but they have to advance scholarly knowledge, and contribute to research practice in an original way. Each issue of <strong>Qualitative Research in Medicine and Healthcare</strong> provides readers with peer-reviewed articles that examine: the illness experience from multiple and varied perspectives; constructions of health, illness and healthcare that highlight relational and global contexts; healthcare policies in various organizational and institutional settings; the pressures of neoliberalism on healthcare; attention to the communicative dynamics of the patient-provider relationship; narrative approaches to health.</p> Editor’s introduction: research as mediation 2019-05-13T17:27:57+02:00 Mariaelena Bartesaghi <p>Not available.</p> 2019-04-30T10:47:14+02:00 ##submission.copyrightStatement## #ttc on Instagram: a multimodal discourse analysis of the treatment experience of patients pursuing in vitro fertilization 2019-05-13T17:28:01+02:00 Bethany Johnson Margaret M. Quinlan Nathan Pope <p>While searching the Internet for health information is now commonplace, giving and receiving medical expertise on social media platforms such as Instagram (IG) is underexplored. In order to investigate the ways in which social media platforms are a resource for seeking medical expertise, we employed a multimodal discourse analysis; specifically, we focused on the hashtag #ttc and the engagement of the IG community it comprised. We examined three main themes around medical expertise during treatment indexed by the hashtag: treatment protocol choices, treatment side effects and pregnancy diagnosis/confirmation. Our findings suggest that social media platforms provide a new arena in which patients can challenge medical expertise by circumventing it or adopting lay expertise instead of practitioner suggestions. We close with research implications and suggestions for further research.</p> 2019-04-18T13:46:43+02:00 ##submission.copyrightStatement## Clinical translational students' perceptions of research ethics coursework: a case study 2019-05-13T17:28:00+02:00 Linda S. Behar-Horenstein Huibin Zhang <p>Relatively unknown is whether coursework in responsible conduct of research actually achieve the purposes for which it is designed. In this study, the authors report clinical translational students’ perceptions of their research ethics coursework and the alignment between course content as recommended in the literature. We used grounded theory to portray emergent findings across focus groups and semistructured interviews among 31 participants at one clinical translational science hub. We also used thematic analysis to analyze course syllabi. Two themes emerged: Averting scientific misconduct and Responding to ethical dilemmas. Students reported that they did not acquire requisite strategies to address research ethical dilemmas. One of the course syllabi indicated the provision of active learning opportunities. However, the findings did not offer support. Developing experiential learning activities and ensuring that course content is aligned with the contemporary ethical practices, such as case study and portfolio development, is recommended.</p> 2019-04-18T14:07:51+02:00 ##submission.copyrightStatement## Experiences of weight-related stigma among low-income rural women of higher weights from the midwestern United States 2019-05-13T17:27:59+02:00 Katherine Hughes Andrea E. Bombak Samuel Ankomah <p>Weight-related stigma and stereotypes are widespread. Despite established research highlighting the disproportionate disparities rural individuals face, studies focusing on women in rural and low-income environments are underrepresented in the literature. The current study addressed these gaps in the literature using 25 in-depth interviews, which were analyzed using interpretive phenomenological procedures. The research questions were: i) what are low income rural women of higher weights’ understandings and experiences of weight stigma in healthcare? and ii) to what extent do their experiences of stigma affect or do not affect their healthcare-related behaviors? Sixteen women in the study experienced weight-related stigma in healthcare. Many delayed their care while others felt their care was essentially denied. Findings indicate that more can be done to address weight-related stigma.</p> 2019-04-18T14:22:33+02:00 ##submission.copyrightStatement## Health concerns of young Israelis moving from the ultra-orthodox to the secular community: vulnerabilities associated with transition 2019-05-13T17:27:58+02:00 Baruch Velan Ronit Pinchas-Mizrachi <p>Many young Israelis leave the Ultra-Orthodox religious community to join the secular world. In this study we examine health considerations of ex-Orthodox (ExOr) individuals in an attempt to define their vulnerabilities and needs.12 young adults were asked to relate to health problems that trouble the ExOr community. The semi-structured interviews were analyzed qualitatively to identify relevant motives. Interviewees indicated that the ExOr population could be affected by mental health problems, including stress and depression, by sexual health problems, and by risks related to substance abuse and hazardous behavior. Interviewees suggested that these problems are associated with difficulties encountered prior and during the transition process, as well as with the hardships of acculturation and assimilation in the secular world. Comparisons to previous findings on the health of immigrants, young adults and LGBT populations suggest that the process of transition per-se could engender vulnerability and trigger health problems.</p> 2019-04-18T15:20:45+02:00 ##submission.copyrightStatement## Experiences of patients living with inflammatory bowel disease in rural communities 2019-05-13T17:28:02+02:00 Rebecca K. Britt Andrew Englebert <p>Inflammatory bowel disease (IBD) is a chronic disease that often has fluctuating and painful symptoms. IBD patients must cope with a lifelong illness with relapses, remissions, and varied treatments that can affect their overall quality of life. Patients living in a rural setting are faced with further challenges such as access to healthcare, physician availability, and socioeconomic factors. For the current study, we interviewed adult patients in a clinic who were diagnosed with IBD for at least 3 years to better understand their experiences with the aim to inform intervention and educations for patients and physicians. Through a thematic analysis, we argue that five themes emerged from the data: i) IBD etiology, ii) ceding self-care, iii) environmental factors associated with disclosure, iv) stigma, and v) environmental obstacles to care. We suggest opportunities for research and collaboration among researchers and practitioners to help reduce stigma associated with IBD and promote health among rural communities.</p> 2019-04-18T00:00:00+02:00 ##submission.copyrightStatement##