Above and beyond: an exploratory study of breast cancer patient accounts of healthcare provider information-giving practices and informational support


Submitted: 28 February 2018
Accepted: 21 July 2018
Published: 31 August 2018
Abstract Views: 691
PDF: 392
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Authors

This qualitative study examines breast cancer patients’ accounts of the characteristics of healthcare providers’ supportive information- giving practices. Twenty-two women diagnosed with breast cancer participated in semi-structured in-depth interviews designed to understand their experiences receiving supportive information from healthcare providers (e.g., oncologists, surgeons, nurse practitioners). Participants’ accounts suggest that providers who spend extensive time discussing cancer-related information and who explain that information thoroughly so that patients can understand their medical situation, are communicating informational support in contrast to merely presenting factual information related to cancer diagnosis and treatments. Participant accounts further suggest that the supportive nature of provider information-giving practices results from message framing, or the provider’s metacommunication.

Rutten LJF, Arora NJ, Bakos AD, et al. Information needs and sources of information among cancer patients: A systematic review of research (1980-2003). Patient Educ Couns 2002;57:250-61. DOI: https://doi.org/10.1016/j.pec.2004.06.006

Dakof GA, Taylor, SE. Victims’ perceptions of social support: What is helpful from whom? J Pers Soc Psychol 1990;1:80-9. DOI: https://doi.org/10.1037/0022-3514.58.1.80

Nazione S, Silk KJ, Robinson J. Verbal social support for newly diagnosed breast cancer patients during surgical decision-making visits. J Commun Health 2016;9:267-78. DOI: https://doi.org/10.1080/17538068.2016.1199174

Robinson JD, Tian Y. Cancer patients and the provision of informational social support. Health Commun 2009;24:381-90. DOI: https://doi.org/10.1080/10410230903023261

Robinson JD, Turner J. Impersonal, interpersonal, and hyperpersonal social support: Cancer and older adults. Health Commun 2003;15:227-34. DOI: https://doi.org/10.1207/S15327027HC1502_10

Sloan AG, Knowles A. Improving communication between healthcare providers and cancer patients: A pilot study. J Commun Health 2013;6:208-15. DOI: https://doi.org/10.1179/1753807613Y.0000000040

Uchino BN. Understanding the links between social support and physical health: A life-span perspective with emphasis on the separability of perceived and received support. Perspect Psychol Sci 2009;4:236-55. DOI: https://doi.org/10.1111/j.1745-6924.2009.01122.x

Dunkel-Schetter C. Social support and cancer: Findings based on patient interviews and their implications. J Soc Issues 1984;40:77-98. DOI: https://doi.org/10.1111/j.1540-4560.1984.tb01108.x

Albrecht TL, Goldsmith DJ. Social support, social networks, and health. In:

Thompson TL, Dorsey A, Miller KI, Parrott R, editors. Handbook of health

communication. Mahwah, NJ: Lawrence Erlbaum; 2003. p. 263-84.

Albrecht TL, Adelman MB. Communicating social support: A theoretical

perspective. In: Albrecht TL, Adelman MB, editors. Communicating

social support. Newbury Park, CA: Sage; 1987. p. 18-39.

Brashers DE. Communication and uncertainty management. J Commun 2001;51:477-97. DOI: https://doi.org/10.1111/j.1460-2466.2001.tb02892.x

Palmer-Wackerly AL, Krieger JL, Rhodes ND. The role of health care provider and partner decisional support in patients’ cancer treatment decision-making satisfaction. J Health Commun 2017; 22: 10-9. DOI: https://doi.org/10.1080/10810730.2016.1245804

Innes S, Payne S. Advanced cancer patients’ prognostic information preferences: A review. Palliat Med 2009;23:29-39. DOI: https://doi.org/10.1177/0269216308098799

Cobb S. Social support as a moderator of life stress. Psychosom Med 1976;38:300-14. DOI: https://doi.org/10.1097/00006842-197609000-00003

Barrera M, Ainlay SL. The structure of social support: A conceptual and empirical analysis. J Community Psychol 1983;11:133-43. DOI: https://doi.org/10.1002/1520-6629(198304)11:2<133::AID-JCOP2290110207>3.0.CO;2-L

Cutrona CE, Suhr JA. Controllability of stressful events and satisfaction with spouse support behaviors. Commun Res 1992;2:154-74.

Goldsmith DJ. Communicating social support. New York: Cambridge University Press; 2004. DOI: https://doi.org/10.1017/CBO9780511606984

Rose JH. Social support and cancer: Adult patients’ desire for support from family, friends, and health professionals. Am J Community Psychol 1990;18:439-64. DOI: https://doi.org/10.1007/BF00938117

McPherson CJ, Higginson IJ, Hearn J. Effective methods of giving information in cancer: A systematic literature review of randomized controlled trials. J Public Health Med 2001;23:227-34. DOI: https://doi.org/10.1093/pubmed/23.3.227

Mills ME, Sullivan K. The importance of information giving for patients newly diagnosed with cancer: A review of literature. J Clin Nurs 1999;8:631-42. DOI: https://doi.org/10.1046/j.1365-2702.1999.00296.x

Jenkins K, Fallowfield L, Saul J. Information needs of patients with cancer: Results from a large study in UK cancer centres. Br J Cancer 2001;84:48-51. DOI: https://doi.org/10.1054/bjoc.2000.1573

Corbin J, Strauss A. Basics of qualitative research: Techniques and procedures for developing grounded theory. 3rd ed. Thousand Oaks, CA: Sage;2008. DOI: https://doi.org/10.4135/9781452230153

Charmaz K. Constructing grounded theory: A practical guide through qualitative analysis. Thousand Oaks, CA: SAGE:2006.

Charmaz, K. Constructing grounded theory. 2nd ed. Thousand Oaks, CA: SAGE:2014.

Meluch, Andrea L. 2018. “Above and Beyond: An Exploratory Study of Breast Cancer Patient Accounts of Healthcare Provider Information-Giving Practices and Informational Support”. Qualitative Research in Medicine and Healthcare 2 (2). https://doi.org/10.4081/qrmh.2018.7387.

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