Cover Image

Expert services for rare anaemias across Europe

Beatrice Gulbis

Abstract

New challenges and priorities are given in the EU Health programme 2007-2013. The objectives of the programme are to improve citizens’ health security, to promote health to improve prosperity and solidarity, and to generate and disseminate health knowledge. If challenges and priorities have been defined globally for rare diseases by the European Commission, persons involved in rare anaemias have taken the opportunity to contribute to the empowerment of patients with rare anaemias. One of the ENERCA partners objectives was the mapping of existing centres that take care of patients with rare anaemias in Europe. Another goal was to obtain a directory of facilities available per centre for patients with rare anaemias. We thought that with those results it could realistically help to define a consensus regarding the criteria to be recognised as a centre of expertise for haemoglobinopathies and very rare anaemias.

Full Text:

Download PDF
Submitted: 2013-03-19 18:28:40
Published: 2013-03-26 00:00:00
Search for citations in Google Scholar
Related articles: Google Scholar
Abstract views:
2816

Views:
Download PDF
238

Article Metrics

Metrics Loading ...

Metrics powered by PLOS ALM


Copyright (c) 2013 Beatrice Gulbis

Creative Commons License
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.
 
© PAGEPress 2008-2017     -     PAGEPress is a registered trademark property of PAGEPress srl, Italy.     -     VAT: IT02125780185