Cultural implications of filial obligation and the Asian Indian American family caregiver


Submitted: 6 February 2017
Accepted: 23 March 2017
Published: 21 July 2017
Abstract Views: 2105
PDF: 725
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Authors

Family caregivers in young adulthood from different racial/ethnic groups represent an understudied population. Of this group, Asian Indians are a diverse and fast-growing immigrant population in the US and present unique challenges for health care providers. To illustrate factors influencing a young family caregiver from an under-represented racial/ethnic population, we report on the case of a 33 year-old American from an Asian Indian background who was a caregiver for his father with Normal Pressure Hydrocephalus (NPH). With this case report, we illustrate that medical providers should attend to cultural norms of the family system, including family communication patterns, filial obligation, and decision-making.

Levine C, Hunt GG, Halper D, et al. Young adult caregivers: A first look at an understudied population. Am J Public Health, 2005;95(11):2071-75. DOI: https://doi.org/10.2105/AJPH.2005.067702

National Alliance for Caregiving and AARP Public Policy Institute. Caregiving in the U.S. Washington, DC: National Alliance for Caregiving and AARP; 2015. Retrieved on 2/18/2016 from http://www.caregiving.org/caregiving2015/

Robinson CA, Bottorff JL, Pesut B, et al. The male face of caregiving: A scoping review of men caring for a person with dementia. Am J Mens Health, 2014;8(5):409-26. DOI: https://doi.org/10.1177/1557988313519671

South Asian American Leading Together [SAALT]. A demographic snapshot of South Asians in the United States; 2012. Retrieved on 2/14/2015 from

http://saalt.org/wp-content/uploads/2012/09/Demographic-Snapshot-Asian-American-Foundation-2012.pdf.

United States Census Bureau. The Asian population: 2010; 2012. Retrieved on 2/14/20015 from http://www.census.gov/prod/cen2010/briefs/c2010br-11.pdf.

Pope ND, & Baldwin P. Life interrupted: Young adults as family caregivers. Gerontol, 2015;55(S2):740. DOI: https://doi.org/10.1093/geront/gnv374.05

Diwan S, Jonnalagadda SS, Balaswamy S. Resources predicting positive and negative affect during the experience of stress: A study of older Asian Indian immigrants in the United States. Gerontol, 2014;44(5):605-14. DOI: https://doi.org/10.1093/geront/44.5.605

Sharma RK, Khosla N, Tulsky JA, Carrese JA. Traditional expectations versus US realities: First- and second-generation Asian Indian perspectives on end-of-life care. J Gen Intern Med, 2011;27(3):311-17. DOI: https://doi.org/10.1007/s11606-011-1890-7

Lee M, Yoon E, Kropf N. Factors affecting burden of South Koreans providing care to disabled older family members. Inter J Aging Soc Develop, 2007;64(3):245-62. DOI: https://doi.org/10.2190/C4U5-078N-R83L-P1MN

Kalavar JM, Willigan JV. Older Asian Indians resettled in America: Narratives about households, culture and generation. J Cross Cult Gerontol, 2005;20(3):213-30. DOI: https://doi.org/10.1007/s10823-006-9004-4

Lurie N, Zhan C, Sangl J, et al. Variation in racial and ethnic differences in consumer assessments of health care. Amer J Man Care, 2003;9(7):502-9.

Murray-Garcia JL, Selby JV, Schmittdiel J, Grumbach K, Quesenberry CP. Racial and ethnic differences in a patient survey: patients’ values, ratings, and reports regarding physician primary care performance in a large health maintenance organization. Med Care. 2000;38(3):300-310. DOI: https://doi.org/10.1097/00005650-200003000-00007

Siu AL. Variation and quality of self-report health data: Asian and Pacific Islanders compared with other ethnic groups. Med Care. 1995;33(11):1120-1131. DOI: https://doi.org/10.1097/00005650-199511000-00005

Taira D, Safran D, Seto T, Rogers W, Kosinski M, Ware J. Asian American patient ratings of physician primary care performance. J Gen Intern Med. 1997;12(4):237-242. DOI: https://doi.org/10.1007/s11606-006-5046-0

Van Keer R, Deschepper R, Huyghens L, et al. Dealing with cultural diversity during the process of communication and decision-making in the ICU: A literature review. Crit Care, 2014;18(S1):24. DOI: https://doi.org/10.1186/cc13214

Health Resources and Services Administration. Transforming the face of health professions through cultural and linguistic competence education: The role of the HRSA Centers of Excellence; 2002. Retrieved from http://www.hrsa.gov/culturalcompetence/cultcompedu.pdf

Pinderhughes E. Understanding race, ethnicity, and power: The key to efficacy in clinical practice. New York: Free Press; 1989.

Cox T. Cultural diversity in organization: Theory, research, and practice. San Francisco, CA: Berrett-Koehler Publishers, Inc.; 1994.

Eli K. Social networks, social support and coping with serious illness: The family connection. Soc Sci Med, 1996;42(2):173-83. DOI: https://doi.org/10.1016/0277-9536(95)00100-X

Periyakoil VS, Neri E, Kraemer H. No easy talk: A mixed methods study of doctor reported barriers to conducting effective end-of-life conversations with diverse patients. PLoS ONE, 2015; 10(4): e0122321. DOI: https://doi.org/10.1371/journal.pone.0122321

Brodaty H, Donkin M. Family caregivers of people with dementia. Dialogues in Clinical Neuroscience. 2009;11(2):217-28. DOI: https://doi.org/10.31887/DCNS.2009.11.2/hbrodaty

Villaruel AM, Portillo CJ, & Kane P. Communicating with limited English proficiency persons: Implications for nursing practice. Nurs Outlook, 1999;47(6):262-70. DOI: https://doi.org/10.1016/S0029-6554(99)90024-6

Dysart-Gale, D. Clinicians and medical interpreters: Negotiating culturally appropriate care for patients with limited English ability. Fam Comm Hlth, 2007;30(3):237-46. DOI: https://doi.org/10.1097/01.FCH.0000277766.62408.96

Gravel K, Légaré F, Graham ID. Barriers and facilitators to implementing shared decision-making in clinical practice: a systematic review of health professionals’ perceptions. Implementation Sci, 2006;1(16). DOI: https://doi.org/10.1186/1748-5908-1-16

Carteret M. Eliciting quality patient response in cross-cultural care. Cross-cultural communications for health care professional; 2011. Retrieved on May 9, 2016 from http://www.dimensionsofculture.com/2011/03/eliciting-quality-patient-responses-in-cross-cultural-care/.

Wright AA, Stieglitz H, Kupersztoch YM, Paulk ME, Kim Y, Katz IT, et al. (2013) United States Acculturation and Cancer Patients’ End-of-Life Care. PLoS ONE 8(3): e58663. DOI: https://doi.org/10.1371/journal.pone.0058663

Levin S, Like R, Gottlieb J. ETHNIC: A framework for culturally competent clinical practice; 2000. New Brunswick, NJ: Department of Family Medicine, UMDNK-Robert Wood Johnson Medical School.

Floyd K. Culture and Gender. In Interpersonal Communication (pp. 36-43); 2011. New York: McGraw-Hill Education.

Fadiman, Anne. Spirit Catches You And You Fall Down. 1997. New York: Farrar, Straus and Giroux.

Fox, M. Lia Lee dies; Life went on around her, redefining care. The New York Times. 2012.

Retrieved on March 21, 2017 from http://www.nytimes.com/2012/09/15/us/life-went-on-around-her-redefining-care-by-bridging-a-divide.html

Doehring C. Intercultural care: Trust and theological accountability. In the practice of pastoral care, revised and expanded edition (pp. 1-36); 2014. Westminster John Knox Press.

Paula K. Baldwin, Department of Communication Studies, Western Oregon University, Monmouth, OR
Communication Studies, Assistant Professor
Natalie D. Pope, University of Kentucky, Lexington, KY

Assistant Professor

College of Social Work

Adam D. Marks, Department of Internal Medicine, University of Michigan, Ann Arbor, MI

MD, MPH

Department of Internal Medicine

Baldwin, Paula K., Natalie D. Pope, and Adam D. Marks. 2017. “Cultural Implications of Filial Obligation and the Asian Indian American Family Caregiver”. Qualitative Research in Medicine and Healthcare 1 (2). https://doi.org/10.4081/qrmh.2017.6618.

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