Cover Image

A cross sectional, observational survey to assess levels and predictors of psychological wellbeing in adults with epidermolysis bullosa

Emma Dures, Nichola Rumsey, Marianne Morris, Kate Gleeson
  • Nichola Rumsey
    University of the West of England, Bristol, United Kingdom
  • Marianne Morris
    University of the West of England, Bristol, United Kingdom
  • Kate Gleeson
    University of Surrey, Guilford, United Kingdom

Abstract

Epidermolysis bullosa (EB) describes a cluster of genetically determined skin disorders. Symptoms can be painful, disabling and disfiguring, yet there is little research on the psychological impact of the disease. The study aim was to measure psychological wellbeing in adults with EB; and to examine the association between psychological wellbeing and self efficacy, health locus of control and adjustment to appearance in an observational, cross sectional survey. Questionnaire packs comprising the General Health Questionnaire (GHQ-12), the General Self Efficacy Scale (GSE), the Multidimensional Health Locus of Control Scale (MHLOC), and the Derriford Appearance Scale (DAS-24), were sent to approximately 385 adults with EB. The data were analysed using SPSS. Eighty-seven participants responded. Scores on the GHQ-12 showed non-problematic psychological health in 36% of the sample; levels bordering on clinical disorder in 32.1% and severe psychological distress in 31.9%. No correlations were found between demographic factors (age and sex) or clinical factors (EB type and perceived severity) and psychological well-being. Scores on the GSE, the internal locus of control sub-scale of the MHLOC and the DAS-24 showed them to be statistically significant correlates of psychological wellbeing (P<0.001; P<0.018; and P<0.001 respectively). In a regression analysis, adjustment to appearance and self efficacy accounted for 24% of the variation in psychological wellbeing. Adults with EB might be at risk of experiencing poor psychological health. Interventions designed to enhance disease self management, self efficacy and improve body image are likely to be beneficial in this clinical group.

Keywords

psychological wellbeing, skin condition, disfigurement, self-efficacy, body image

Full Text:

PDF
HTML
Submitted: 2012-10-26 22:24:23
Published: 2013-01-23 10:59:33
Search for citations in Google Scholar
Related articles: Google Scholar
Abstract views:
579

Views:
PDF
499
HTML
70

Article Metrics

Metrics Loading ...

Metrics powered by PLOS ALM


Copyright (c) 2013 Emma Dures, Nichola Rumsey, Marianne Morris, Kate Gleeson

Creative Commons License
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.
 
© PAGEPress 2008-2017     -     PAGEPress is a registered trademark property of PAGEPress srl, Italy.     -     VAT: IT02125780185